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Finding Reliable Internet Patient Information
The Internet is a powerful tool and an excellent source for all types of
information. Many Internet sites contain information about medical conditions
and health care.
A good site can provide additional and valuable information about your
condition, and enhance understanding of your diagnosis or your treatment. By
learning more about your condition, you can spend more time with your physician
discussing details of your care and more effectively participate in the medical
decision making process.
While the Internet is very useful for finding health care information, it is
important to be aware of its limitations and potential risks. Here are some
facts to consider:
How do I know if medical information on the Internet is
accurate and reliable?
Determining whether health information on the Internet is accurate and
reliable can be difficult, even for practicing physicians. Professional
appearing sites may contain inaccurate information, or may be biased towards
commercial interests that support the site. Meanwhile, unprofessional appearing
sites may potentially contain accurate information.
There are several keys to finding and using accurate health care information
on the Internet:
- Discuss information that you find on the Internet with your physician.,
who can help you better understand the information and help determine if it is
accurate. Bring hard copies with you to your visit if you have a specific
question about a site or information contained on it.
- Look for information on sites from credible sources including your
physician's site, medical societies, government agencies, and university
health centers.
- A site that is linked to a credible site could potentially have inaccurate
information, as the organization that maintains a site cannot control
information on sites to which they link, and these sites are subject to
change.
- Ask your physician to recommend sites for your condition.
- Read all health information critically, and be aware that potential
inaccuracies may exist.
What are some credible sources of otolaryngology (ear, nose, & throat)
information on the Internet?
There are many websites that contain educational materials about
otolaryngology disorders. Here is a list of some very credible (and free) health
information sites:
The American Academy of Otolaryngology-Head and
Neck Surgery is the largest organization that represents ear, nose,
and throat specialists, and its website has many resources including a section
on patient education.
The National
Institute on Deafness and Other Communication Disorders is the
division of the National Institutes of Health (NIH), that is "mandated to
conduct and support biomedical and behavioral research and research training in
the normal and disordered processes of hearing, balance, smell, taste, voice,
speech, and language." The site has information about specific health topics,
clinical trials, and research news.
CancerNet
is a service of the National Cancer Institute, a division of the NIH. This site
has information about all types of cancer (including cancer of the head and
neck), testing, treatment, clinical trials, and research. There are also
resources for coping with cancer and for support of cancer patients.
MEDLINEplus
is a service from the National Library of Medicine. The site includes links to
other credible health sites selected by the National Library of Medicine. The
site also allows you to search MEDLINE, the largest and most accurate database
of the scientific medical literature. Additionally, the site has a guide to more
than 9,000 prescription and over-the-counter medications.
How can I protect my privacy online when looking at health information?
As an Internet user, you should be concerned about your privacy, and how your
personal information is handled online. It is very important to keep current
with the latest issues related to electronic privacy. Here are a several things
you should do:
- Become familiar with your employer's policies regarding Internet usage
while at work. Technology exists that allows your employer to monitor what
Internet sites you visit and to read your e-mail. This is within their legal
rights in most cases.
- Review privacy policies of websites you visit prior to submitting any
information you wish to keep private.
- When registering for a commercial healthcare website, realize that every
page that you visit on the site can be linked with your personal information
(name, e-mail address, etc). This "profile" could potentially be revealed to
third parties.
- Be wary of free questionnaires and health calculators, as this information
can easily be combined with a user profile that you submit to a site.
- Keep your passwords protected, and do not share your accounts with family
or friends.
- Learn how to clear your cache and erase "cookies" from your system.
- Consider using a firewall for your network connection, encryption for your
e-mail, multiple aliases when filling out user profile forms, and tools that
allow you to navigate the World Wide Web anonymously.
How can I access my otolaryngologist's website?
If a member of the AAO-HNS maintains a practice website, it is listed with
his or her address and fax number through the easy-to-use "Find
an Otolaryngologist" search engine. Patients can search for
physicians in their area using a variety of search
options.
© 2004 AAO-HNS/AAO-HNSF
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